Position paper 25 June 2021

IFPMA Data Ethics Principles

Position paper

These Data Ethics Principles are intended to help the pharmaceutical industry use data responsibly and sustainably, in alignment with the IFPMA Ethos of care, fairness, respect, and honesty.

  • Ethical data use is critical to innovation, advancing scientific and medical understanding, ensuring patient safety, and improving healthcare for the benefit of individual patients and broader society.
  • Ethical data use helps build a culture of trust with our stakeholders. Conversely, unethical data use can harm individuals and society, and damage that trust. As stated in the IFPMA Code of Practice, “Patient trust is the lifeblood of our industry: we must take every opportunity to earn, sustain and grow that trust.” This includes how we handle and use data.

IFPMA Data Ethics Principles Webinar Video (June 2021):